DATA: Access, Creation, and Maintenance of Data and Computing Resources

The goal of the workshop is to bring together the pandemic research community, discuss the challenges and opportunities associated with access, creation, and maintenance of data and computing resources for pandemic research, and foster collaborations for future research. The workshop will feature speakers from academia, industry, and government to share their perspectives as data providers, data consumers (domain researchers, health agencies/operations), and data researchers (infrastructure, privacy, security, and ethics).

Together, we will examine questions including but not limited to the following. The expected outcome is a better understanding from the community and a workshop report that contributes to the research roadmap of PREPARE. Watch the event here.

• What data can be collected? What are the hurdles to collect the data?
• What data can be shared? What are the hurdles to share the data?
• What data is most useful? What are the hurdles to access the data?
• What technology/infrastructure has worked well, and what is still needed?
• What policy/operational mechanisms have worked well, and what are still needed?
• What are the key differences (if any) and issues for supporting research use and operational use of the data for decision making?
• What are the key privacy, security, and ethical issues for access and use of the data?

Agenda

Each synchronous session (1~1.5 hours) will feature keynote talks followed by a mini-panel. Asynchronous discussion sessions will continue on YouTube after the synchronous sessions.

March 12, 2021
11 a.m. ET | Mobility, Search, and Social Network Data

• Evgeniy Gabrilovich, Google Health
• Ingemar Cox and Vasileios Lampos, University College London
• Alex Dow, Facebook

2 p.m. ET | Contact Tracing, Syndromic Surveillance, and Social Media

• Marcel Salathe, École Polytechnique Fédérale de Lausanne
• John Brownstein, Harvard University and Children's Hospital Boston
• Jure Leskovec, Stanford University

March 13, 2021
11 a.m. ET | Clinical and Epidemiological Data

• Matthew Biggerstaff, Centers for Disease Control and Prevention (CDC)
• Nathaniel Hupert, Weill Cornell Medicine

2 p.m. ET | Data Curation and Data Sharing

• Lucila Ohno-Machado, University of California San Diego
• Salil Vadhan, Harvard University